DNA testing service 23AndME filed for bankruptcy protection on March 16, raising concerns about what will happen with genetic data from its 15 million customers.
23Andme said, “Data privacy is a key consideration in potential transactions.” However, security experts and lawmakers are warning customers to take action to protect their data, considering new owners can change the way the company manages and uses data.
If you're one of the 15 million people who shared your DNA with 23andMe, we've outlined the steps you can take to protect yourself. You cannot delete all 23andMe data, but there are a few things you can control.
The data deletion process can take time as users report that the 23AndMe website is working slower than usual and is likely to be flocking to the site to delete data.
How to delete 23andMe data
You must be logged in to your account to delete data from 23andMe.
First, go to the Profile Settings section. Next, scroll to the selection labeled 23andMe data. From there,[表示]Click on the option and[削除データ]Scroll to the section. next,[データ]Select the button to permanently remove the button.
Next, you will receive an email from 23andMe using a link that allows you to confirm your deletion request.
You can choose to download a copy of the data before deleting it.
23Andme's Privacy Policy states that the company and its labs will “preserve the genetic information, date of birth and gender necessary to comply with applicable legal obligations.”
The policy will continue. “23AndMe also retains limited information related to account and data deletion requests, including, but not limited to, email addresses, account deletion request identifiers, communications related to inquiries or complaints, legal, contractual obligations and/or legal claims, and limited communications related to the limited period required to defend the facility, monitoring and compliance of legal claims.”
This essentially means that 23andMe may hold some of your information for an unspecified period of time.
How to destroy 23andMe test samples and revoke permission to use data for research
If you previously chose to store saliva samples and DNA in 23andMe, change this setting.
You can revoke your permission by going to the 23andMe Account Settings page and then going to your preference.
Additionally, if you have previously agreed to 23andME and third-party researchers using genetic data and samples, you can withdraw your consent from your account setting research and product consent form.
You can reverse that consent, but there is no way to delete that information.
Check in with your family
If you request data to be deleted, it is important to encourage families to check in and do the same, as it affects not only the DNA that is at risk for sales, but also those involved.
And while you're in it, it's worth checking in with your friends to ensure that all your loved ones are taking steps to protect their data.